On September 4, 2014, we learned that our six-year-old son Michael had DIPG, a brainstem tumor that was inoperable with no effective treatments. It is the before and after day because right then, on that day, our family, our minds, hearts and souls, and our entire view of the world would never be the same again. It is the day that I laid in a hospital bed to sleep next to my son and cried the entire night, trying not to wake him with the full-body shaking from my sobs. It is the day we tried to push out of our minds the horror of our daughter, Lila, growing up without her big brother. It is the day that we learned that DIPG would destroy our lives.
But we are not done, and DIPG is not going to win.
With our $100,000 investment, we are pleased to be making an impact alongside our Collaborative partners by helping to fund DIPG research projects that will be shared in more detail in upcoming weeks. Last year’s funding through the Collaborative included DIPG projects at institutions such as Memorial Sloan Kettering Cancer Center, Dana-Farber Cancer Institute, Stanford University, Children’s National Medical Center, and Cincinnati Children’s Hospital, to name just a handful.
This is just the beginning for our research initiatives, and we will be eager to share with you more news about additional research grants from Michael Mosier Defeat DIPG Foundation that we expect during the next several months.
On a day that has such harsh memories for our family – of a cold hospital meeting room where we learned the devastating fate of our firstborn child – we want to turn the tables and do something positive that we hope will one day save another family from that same experience.
This is our motivation, and it is one shared by the Huffman family and Olympia family who have joined us as part of the Defeat DIPG Network in Washington state and Texas, respectively. If a family must get the news that their child has DIPG, we want it to be followed with a list of potential treatments and with HOPE for their child’s survival and bright future.
Please remember the difficult reality: We are not fighting so hard for our own child. We are fighting for yours. We are fighting for the family that has absolutely no idea that tomorrow they will learn their child has a brain cancer with near 0% survival.
On behalf of Michael Mosier Defeat DIPG Foundation, and our partners at Avery Huffman Defeat DIPG Foundation and Connor Man Defeat DIPG Foundation, we want to say: THANK YOU. We appreciate your trust and continued support. We can assure you that we take nothing more seriously than making the best use of every single dollar we have to put towards a cure.
This is just the start . . . Stick with us because there is so much more ahead, and we cannot do it without you.
Together, we will #defeatDIPG. defeatdipg.org/donate
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