Kylie was 10 when we first noticed a change in her eyes. As the day progressed she was stumbling and having trouble seeing. We took her to ER, and that’s where I as told she had fluid in her brain and was going for a 3 hour ambulance ride. The next day a shunt was put in and the worst news ever was received. Kylie was given one year.
As the weeks progressed, she lost functions quickly: walking, motor functions, trouble swallowing. She had to have an NG tube. We went to two radiation treatments by ambulance. She was going, and very quickly. That’s when we had to make a tough decision that no parent should have to make. Take her home to die, or make her suffer more.
She was put on hospice and home only a week and half when she passed on Sept 12, 2014. Her battle only lasted 8 weeks. . . . 8 weeks hard to believe.
Kylie was so loving and caring. Always so giving to others. She loved her family and brothers and sisters.
She enjoyed reading and drawing. She wrote so many stories, and liked soccer, tae kwon do, and four wheeling. She loved collecting rock and running after snakes.
She is missed always.
Facebook pages: rememberingkylie & kylie’s bear drive