Riley has been a beam of sunshine in every life that he has stepped into – and now we’re trying to brighten his, and his family’s life in their greatest time of need.
A couple of weeks ago, in October, Riley’s parents noticed his eyes were crossing. On November 1st, 2016, Riley was diagnosed with an extremely aggressive, rare form of pediatric brain cancer known as Diffuse Intrinsic Pontine Glioma (DIPG), which typically affects children between the ages of 5 and 9, and has an extremely low survival rate. Riley turned 5 years old in June.
Riley’s dad serves with the 82nd Airborn Division at Fort Bragg, and he is an Afghan war veteran. His mother works for NC Community College, but has been there for less than a year and does not yet qualify for family leave.
This soon after a diagnosis, many factors are still up in the air, but one constant is that medical care, transportation, and extended job leave are all extremely costly. It is our goal through our crowdfunding campaign to raise as much money as possible in order to support Riley and the rest of the Voss family in this heartbreaking time of need.
Currently, Riley is being treated at Duke Children’s Hospital, and his family is hopeful to get him into a trial Immunotherapy program at Heidelberg University Hospital which seems to be the most promising course of action for Riley. The full treatment cost will be required up front before Riley can begin receiving treatment. This is a very large goal, and one that we will require every donation possible to achieve. This process uses proton and carbon ion radiotherapy, and is one of the most successful DIPG treatment programs to date.
No words can describe the devastation this diagnosis has left with Riley’s Mother, Father, Sister, and our family as a whole. Please help us in our time of need by donating.
You can donate and learn more about Riley, pediatric DIPG brain cancer, and our treatment options at rileyscancersupport.com. Donations made through that site go the Voss family to help with Riley’s treatment and care.
Please keep our family in your thoughts.
Submitted by Riley’s uncle.