Zoey Catherine Daggett was born on Ocotber 17th 2012. She was diagnosed with DIPG, officially on August 1st, or that is what we say. She fell on July 5th 2016 at a park and within a week she stopped using her entire left arm and leg. After x-rays and an MRI it was determined she had an inoperable tumor, but what type our doctors could not tell. After a biopsy on July 18th she started radiation on August 1st. It was on the first we were told that our doctors preliminary pathology results stated that the tumor was DIPG. Zoey completed radiation on September 12th and after multiple “no’s” or “sorry we’re full or closed” we determined that Germany and Immunotherapy was where we were going to go. Zoey will be in Cologne Germany from October 29th until December 14th at the earliest. You can read about her treatment here http://www.iozk.de/en/topics/tumour_vaccine
We have spoken with doctors in London and in NYC regarding CED treatment. Right now all trials or slots are closed but once opened they will let us know. Also if they can do compassionate care they will let us know. Insurance will only cover US only treatment, so everything in Germany is coming out of our own pocket. This will run us up to $50,000 USD for the first portion of the treatment. Then it will be $10,000 USD for every month we want to return, or if Zoey is able to return. This does not include travel or living expenses. We are fundraising and doing everything we can to save but in the end it won’t be enough. The same will be for the CED treatment in the UK, it will all be out of pocket.
While Zoey is so happy and her normal 4 year old self, we are waiting fo the other shoe to drop so to speak. We know we don’t have forever, we only have for now and we are making the best of every moment with her. She is unaware of her tumor and just goes with the flow of meeting new people, new doctors, and feeling so amazingly special. Zoey is so special to us. We can’t thank everyone enough for the thoughts and prayers, the love and support. We never knew we had this and it’s just so overpowering the reach everyone has. Just thank you so much and so much love to everyone.